Providing information, resources and good practice guidance about supporting young carers in families affected by HIV

Engage toolkit - young carer with mum and dad

Our toolkit was funded by the Elton John Aids Foundation to help you support young carers in families affected by HIV.

What do young carers affected by HIV want?

Young carers affected by HIV are calling for:

  • Specialist HIV and young carers training sessions for all teachers, education professionals, social care and health professionals
  • lessons about HIV and the impact on family members and young carers in schools 
  • increased awareness of young carers affected by HIV all the time not just on World Aids day.

What we know

  • The 2011 Census found 166,000 young carers in England of which 50,000 were aged between five and seven years old
  • The number of HIV affected children (those living in families where one or more members is infected by HIV) in the UK is unknown but has been estimated to be over 25,000 
  • In 2015 there are an estimated 101,200 people living with HIV in the UK 
  • People living with HIV in the UK represent a diverse group, although rates still remain highest among men who have sex with men, homosexual and bisexual men, over half (52%) of all people diagnosed in 2015 were born in the UK.

Affecting Change for Families (HIV toolkit)

The HIV toolkit is designed as an introductory guide for professionals to help support young carers and their families.

The HIV Toolkit includes:

Watch our video from young people

Young carers affected by HIV created a short clip illustrating their experiences of living with family members inflicted by the disease.